A Guide for Caregivers
For the Ones Who Carry the Weight Quietly
Being a caregiver is one of the most selfless and exhausting roles a person can take on, and it’s often one of the least recognized. Behind every patient is someone who organizes medications, advocates at appointments, loses sleep to monitor symptoms, and sets aside their own needs day after day.
This page is dedicated to you: the spouse, the child, the friend, the sibling, who has stepped into a role you never trained for but carry out with relentless strength and compassion. We see the rawness, the heartbreak, the guilt, and the resilience. We understand that caregiving is not just an act of love, it’s a constant emotional, physical, and mental balancing act.
Here, you’ll find real talk, real support, and real resources just for you. Because you shouldn’t have to do this alone.

A Letter from Tracy
Ron's Wife and Caregiver





When I found out Ron had cancer, my world was turned upside down. The news hit me like a tidal wave, crashing over me and changing everything in an instant. One moment, we were dreaming of our future together; the next, we were facing a scary diagnosis and an uncertain road ahead.
My life was forever altered, and every day became a balancing act – managing medications, doctor's appointments, and treatments, while trying to hold on to some semblance of normalcy.
Even routine responsibilities, like caring for our dogs, required extra planning. I'd have to find pet care and leave my home for extended periods. I was lucky my children were older but I still had to leave my high school daughter for weeks at a time. At one point I stayed in the city for a month away from her. This only adding another layer of stress to an already overwhelming situation.
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I own my own business and that took a hit because I couldn’t do everything that needed to be done. Thanks to my office staff, they stepped in and took on extra work and more to help out. It was hard to juggle work, finances, and be there for the kids while facing the fear that had invaded our lives.
My outlook on life has changed. This can happen to anyone. One day everything is fine and the next it’s not. I often feel like I'm living in a dream, like this can't be my reality. My heart races at times and I feel like I can’t breathe. It's surreal, and you just try to make it through the day. The stress, anxiety, and depression that accompany this caregiving role are debilitating, and I've had to navigate those challenges alongside Ron.
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One of the biggest challenges for me is that I want to protect my husband from fear and pain. I want to shield him from the unknowns and the worries that come with this diagnosis. As his partner, it's hard to see the person you love going through this, and it's changed our relationship in many ways.
With the support of our friends, and the community we have never felt alone. They have been a lifeline, offering a listening ear, a helping hand, and a shoulder to lean on.
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Connecting with other caregivers and families going through similar experiences has been invaluable. I have learned so much from them. It’s given me a sense of solidarity and reminded me that I'm not alone in this journey.
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As a caregiver, I've learned that it's not just about providing physical care; it's about being an advocate, a supporter, and a partner. It's about cherishing the moments we share, finding joy in the small victories, and holding on to the love and connection that keeps us going.






FAM Caregiver Support Group
Hosted by Tracy Rolleri
Caring for a loved one with cancer can be overwhelming, and no one should have to go through it alone. Our Caregiver Support Group offers a safe and understanding space to share experiences, connect with others who truly understand, and find encouragement along the way. Whether you’re looking for emotional support, practical tips, or simply a place to be heard, this group is here for you.

Other Resources for Caregivers
Multiple Myeloma-Specific Caregiver Resources
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International Myeloma Foundation (IMF)
Care Partner/Caregiver Resources: Offers a dedicated "Caregivers—or Care Partners" section with guidance on self-care, communication, managing costs, and navigating the caregiving journey. ​
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InfoLine & Support Networks: Provides an InfoLine (1-800-452-CURE; Worldwide: 1-818-487-7455) along with publications, support group referrals, seminars, workshops, and multilingual materials.
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Support Groups Locator: Helps caregivers find local or global support groups; includes contact for starting a new group if none exist nearby.
Multiple Myeloma Research Foundation (MMRF)
Caregiver Guide (PDF): A comprehensive booklet outlining how to support a loved one—including managing symptoms, coordinating care, advocating for specialists and clinical trials, and self-care for caregivers.
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Patient Navigation Center & Mentors: Offers one-on-one assistance via patient navigators and peer “Myeloma Mentors,” as well as educational webinars and toolkits.
CancerCare
Counseling & Support Groups: Offers free counseling from oncology social workers, plus online and telephone support groups specifically for blood cancer caregivers.
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Podcasts & Workshops: Includes series like “Coping with the Stresses of Caregiving When Your Loved One Has Multiple Myeloma” (e.g. April 3, 2025), plus other educational podcasts and workshops.
Gilda’s Club / Cancer Support Community History
‘Caring for Someone with Multiple Myeloma’ (Gilda’s Club PDF): Offers practical caregiving tips such as care planning, communication strategies, dividing household tasks, and seeking support.
HealthTree Foundation
A platform offering tools to manage the disease journey, finding specialists, exploring clinical trials, community forums, podcasts, and learning modules.
Leukemia & Lymphoma Society (LLS)
Offers caregiver support, counseling, financial guidance, access to services like transportation (“Road to Recovery”) and temporary housing (“Hope Lodges”), plus online forums.

